CCHS Network One World Registry
One World, One Family, One Hope
Welcome to the CCHS Network One World Registry serving the Congenital Central Hypoventilation Syndrome (CCHS) Community! This free platform is a way to connect patients, families, and caregivers from across the world. Please consider being part of our rare journey and join now!
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.