The CCHS Network One World Registry

PO Box 43367

Birmingham, AL 35243
Phone: 760-633-3141

Follow us on Twitter @CCHSNetwork


For general questions about the CCHS Network One World Registry, please contact the Registry Administrator:

Contact Person: Melinda Ricctelli, Ph.D.


Phone: (760) 633-3141

Social Media: Follow us on Twitter @CCHSNetwork and on Facebook @TheCCHSFoundation    

Visit the National Organization for Rare Disorders home page at